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infant loss

Wendy Warren was 24 ½ weeks pregnant with her second child when she was placed on bedrest at St. John’s Mercy Medical Center. 11 ½ weeks later, her son, Elijah, was born, but because of Potter’s Syndrome, a birth defect in which the kidneys fail to develop, the Warrens only had a few precious hours with their child before he passed away.

Each year, thousands of parents across the U.S. leave the maternity ward without a child in their arms to face a world of sadness and isolation. Yet, for individuals like Warren, they’ve also discovered a world of hope and support via the Internet.

“After Elijah was born and then shortly passed away, the women that I found online were the only ones I could turn to,” she said. “No one else in my life had any idea what I was going through.  I could share my feelings freely, and these women knew exactly how I was feeling.”

During Warren’s time at St. John’s and through her relationships on the web, a connection was made with another mother going through a similar loss. A connection that in time would help other grieving parents around the world.

Over the past two decades, infant deaths due to Sudden Infant Death Syndrome have been declining – good news for sure, and a lot of credit goes to the Back to Sleep campaign that teaches parents to lay newborns down on their backs for the first year of life.


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